Managing Your PNH

Connecting patients and caregivers in the Paroxysmal Nocturnal Hemoglobinuria (PNH) community

This program is sponsored by Alexion Pharmaceuticals, Inc.

Please note, these programs are intended for US Patients and Caregivers only. For information on Alexion programs for healthcare professionals, please contact

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If you are registering for a webinar, you can skip the next three questions.

In order to register you for this program, we will need some personal information from you, such as your name, contact information and your relationship to PNH. We will use this information to register you for the program and contact you, should any changes to the program arise. We will not use your information for any other purpose without your consent and we do not, and will not, sell your personal information. To learn more, you can review Alexion’s privacy policy.

Your attendance at this public event is voluntary. Please understand that there is a risk that you may be exposed to COVID-19 or other communicable diseases during this event. We have taken measures to provide a safe and sanitary meeting space, but we cannot fully eliminate your risks of exposure, and you are solely responsible for taking all necessary precautions. Alexion encourages all participants to follow CDC guidance for COVID safeguards, available, and to abide by any additional local health requirements. If you, or someone you reside with, tests positive within 5 days of the event, you should not attend the event, regardless of symptoms. Additionally, out of an abundance of caution, anyone exhibiting symptoms (regardless of test results) should not attend. By choosing to attend in person, you confirm you are in adherence with this guidance, local requirements, and voluntarily assume any risk of exposure that may occur in connection with this event. This event is subject to cancellation should the COVID-19 situation change.